They Thought Their Son Had Autism But Then They Found Out He Has A Brain Disorder That Will Only Get Worse

“It’s like Alzheimer’s, but in children. It’s 100% fatal and there currently is no FDA-approved treatment or cure for these suffering children.”

Despite the fact that there is no cure for Sanfilippo Syndrome Type C, Michael and Marisa are fighting to fix that.

As Connor celebrates another year of his life, his parents are desperately hoping they can raise enough money to fund a clinical trial to help prolong Connor’s life and stave off his awful disease.

Michael and Marisa are aiming to raise $3 million dollars so that Dallas researchers with UT Southwestern can prepare to start the very first clinical trial for Sanfilippo Syndrome Type C.

While Michael and Marisa have said that getting to their fundraising goal does not necessarily mean that Connor will be included in the trial, it’s literally their only hope for saving his life and being able to celebrate more birthdays with him.

If you would like to donate to the GoFundMe page created to help fund the clinical trial for Sanfilippo Syndrome Type C, you can do so here.

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