These 2 Little Girls Have A Fatal Brain Disease And Their Family Is Trying To Raise $2 Million Dollars To Help Treat Them

After undergoing genetic screening, it was revealed that Kinley and Kennedy both have something called GM1 Gangliosidosis.

As of right now, successful treatment for GM1 does not exist, and the rare genetic disorder always ends in fatality for children.

Kyle went on to outline what the new reality for their family now looks like. “GM1 Gangliosidosis is an aggressive disease where the body does not produce adequate enzymes to break down certain molecules.”

“Instead, these molecules collect on the brain and spinal cord, leading to widespread neurodegeneration. The list of complications that our girls face is truly terrifying and the idea of watching them slowly fade away is our worst nightmare.”

Currently, Kinley and Kennedy are in a stable phase of GM1, which means they can talk and walk, but they do have speech problems that make it difficult to know what they are trying to communicate.

“Looking at them, one would never know they both face such a grave fate, but there will come a day where each of them will no longer be able to run outside with their friends, jump on their trampoline, or tell their baby sister “I love you” if no treatments are developed,” Kyle said.

GoFundMe; pictured above Kennedy smiles

“Kinley, who wants nothing more than to be a doctor, nurse, or vet so she can help other people, will eventually not be able to take care of herself independently.”

“Kennedy, who loves to dance and sing and dress up, will someday not be able to do her infamous twirls and leaps, or “freeze” you with her Elsa powers.”

Every day for the family means one step towards their girls not being able to grow up and live out their dreams.

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