Chip Chick
“The condition is said to be more painful than childbirth, and it’s tortured sweet Allie these past few years,” Briana said. “CRPS has been called “the suicide disease” because so many people have given up hope.”
When Allie experiences a flare-up, things like drops of rain on her skin, a bracelet touching her, or the air from a ceiling fan cause her pain.
“While having an acute flare-up, she describes it as having a blow torch burning her legs, being stabbed repeatedly, and her bones being crushed, all at the same time,” Briana continued.
“It’s absolutely heartbreaking. Though she has had some remission, unfortunately, she has been back in a wheelchair since November 8, 2021, due to this debilitating disease.”
Allie’s flare-ups have been happening in rapid succession, which has left her needing to be taken to the emergency room 4 times last month alone.
At one point during her treatment, doctors thought they had figured out a medication routine to help alleviate Allie’s pain, but days after starting on that, she wound up back in the emergency room.
Allie recently qualified to begin a new treatment at the Children’s of Wisconsin, located in Milwaukee, starting on December 13th.
Her treatment there will last between 4 to 6 weeks, and some of this will not be paid for by Allie’s insurance company.
“Allie just wants to be a normal kid without debilitating pain,” Allie’s mom Katie wrote. “It’s heartbreaking seeing how much this disease has affected her physically, mentally, and spiritually.
“She’s such an animal lover, and our two dogs, Kona and Willow, bring her so much joy in good times and bad.”
“She loves volleyball, dancing, and gymnastics, but her doctors advise against those activities due to her CRPS. She dreams of working in the medical field someday and helping others.”
