Katharina Buczek
“CRPS is a condition associated with the imbalance and malfunction of the autonomic nervous system. Medically speaking, it is the most painful disease known to man– rating higher than both childbirth and amputation on the McGill Pain Index,” Meagan explained.
“Many people who have CRPS, including myself, describe it as feeling like they are literally being burned alive. CRPS obviously leads to depression, anxiety, and PTSD, and a high number of those diagnosed complete suicide due to the chronic pain and loss of function,” Meagan continued.
After Meagan’s surgery, her nervous and immune system “shut down” and reset incorrectly. Afterward, her nerve signals began to be mistranslated as “extreme and insurmountable pain.”
Initially, Meagan’s burning sensations were concentrated in her hip. Although, CRPS does have the ability to spread in some people.
Unfortunately, Meagan’s CRPS has spread throughout her body and now affects various areas– including her left hip, left calf, left foot, left hand, left wrist, right calf, right foot, right hand, and face/eyes.
“I have undergone thirty-three different surgeries and procedures since being diagnosed with CRPS. I have also spent the last two years trying every therapy available. But, unfortunately, nothing has made a difference in my pain and function,” Meagan said. She also noted that the therapies are all very costly.
Throughout Meagan’s taxing battle, she has worked to maintain hope. She has always loved makeup, and Meagan even created a Youtube channel to share her makeup creations and CRPS journey. She is also thankful for her husband and three children remaining by her side throughout her journey.
“They have all been so amazing and helpful these past two years!” Meagan said. Still, she misses being able to enjoy time with her family. Before her CRPS diagnosis, Meagan was an avid hiker, beach-goer, and dancer.
“CRPS has made me bed-ridden often, so I do not get to spend as much time with my family. It makes me incredibly sad,” Meagan said. Finally, though, Meagan believes she may have found a viable treatment option that can give her back her life.
“We have found a treatment that has succeeded in putting CRPS into permanent remission,” Meagan explained.
The treatment would occur at the Spero Clinic, a holistic medical treatment center located in Arkansas. The center is led by Dr. Katinka van der Merwe, a renowned quantum neurology nerve rehabilitation specialist.
