This Teen Weighs 55 Pounds And Has Been Suffering From An Eating Disorder For Years: Her Family Was Told To Put Her In Hospice But Now They’re Turning To The Internet For Help
Schenectady, New York. Carly is a 19-year-old young woman who has been suffering from an eating disorder for years.
She heartbreakingly weighs just 55 pounds, and her family has been told by medical professionals to just put her in hospice.
For those of you who might not know, hospice is the kind of medical care reserved for patients with a terminal illness, meaning, they aren’t expected to live.
Not wanting to give up on their daughter, Carly’s parents are now turning to the internet for help, and they are extremely interested in hearing from anyone that might have some solutions for how to help Carly since hospice isn’t it.
First, let’s go back to 2015 when Carly was 13-years-old and in 7th grade. At this point in her life, Carly’s parents said that they thought Carly was getting bullied, which resulted in her parents getting her counseling.
The following year, Carly was admitted to the Four Winds in Saratoga, since her parents wanted to try to find a solution for her anxiety in depression.
After Carly was discharged from Four Winds, her parents kept up with her counseling.
They then learned that during school, Carly would skip lunch and walk around the hallways instead of eating.
GoFundMe; pictured above is Carly
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Carly’s parents are positive that Carly met someone with an eating disorder while admitted. After that, it became more and more clear that Carly was having issues with eating.
As the years wore on from there, Carly’s parents found multiple different facilities to help treat Carly. Here’s a comprehensive list of all the places Carly’s parents have taken her for treatment:
Hospital/Treatment Facilities:
Four Winds Saratoga, End of April to end of May 2016, 30 Crescent Avenue, Saratoga, NY 12866
Four Winds Saratoga, Beginning of June 2016 to the end of June (same as above)
Live Well, Albany & Four Winds Outpatient Programs (approx. 8 months) July 2016 – March 2017
Eating Disorder Treatment & Depression
Four Winds Saratoga, May 2017 (same as above)
Center for Discovery, CT Beginning of May 2017 to August 2017 – Treatment for Depression
Intensive Step-Down Program, mom retires to provide continual care for CK, fall 2017
Saratoga Hospital, Saratoga, NY – end of October to beginning of Nov. 2017
Placed in Walden/ECHN Inpatient hospital, Vernon, CT – Nov. 1st to Dec. 23- Rockville Hospital, 31 Union St. Vernon CT 06066
Albany Med, 43 New Scotland Ave. , Albany, NY 12208
March 2018 – April 21st, 2018
April 23, 2018 – May 2, 2018, then to Ellis Inpatient, May 2018
January 2019 – Discharged 2/23/19 -Albany Med.
May 2019 – July 2019 – Hospital Stays @ Burlington, VT Medical, Syracuse (Upstate Hospital) NY, Galisano Hospital in Rochester, NY, Westchester Presbyterian, and Lawrence Hospital and Veritas Collaborative (Eating Disorder Facility), NC – ALL of which they claim can do nothing to help Carly due to her refusal of treatment
September 18, 2019 – September 26 – Albany Medical Stay for Restricting Food
November 10, 2019 – November 15 – Albany Medical Stay for Restricting Food – only kept her this time because they said they could not do anything for her due to her refusal of medical treatment by the staff by CK
December 30, 2019 – Albany Med. Parents bring CK to the Emergency Room for once again restricting her food intake. Admitted
Early 2020 – Saratoga Hospital, for low weight, then multiple surgeries to insert, re-insert, and correct feeding tubes
October 2020 – Bassett Hospital in Cooperstown of which they transferred her to St. Peters Hospital because of her refusal to take feed through the feeding tube
November 2020- St. Peters Hospital until 2nd week of December – due to low weight and not eating, monitoring vitals and potassium & glucose levels
December 26 – Fell at home – Albany Med. Via ambulance where she stayed until the end of January 2021
Currently, Carly is in an outpatient program, and on a GoFundMe page created for Carly, her parents said that she is “struggling with anorexia and OCD for over 5 years but is officially undiagnosed due to other underlying comorbidities.”
“Right now she has two tubes a J-tube and G-Tube and a permanent suprapubic catheter,” Carly’s parents explained. “She has seen over 25 psychiatrists, psychologists, and therapists.”
“At this point, we can’t find anyone who can and is willing to help her further. The medical profession has failed our daughter. Dr.’s and hospital legal teams have insisted the best thing to do is to call HOSPICE.”
“Insurance companies have prevented eating disorder facilities from accepting her, even after we’ve said we would pay out of pocket.”
Despite behind told to put Carly in hospice, her parents are continuing to fight to get Carly the help she desperately needs instead of giving up.
“Our insurance has failed us and the court system has failed our right to reserve our right to have our daughter be given nutrients,” Carly’s parents said.
“Our legal and medical bills fighting for our daughter’s life have become overwhelming. Please help in any way you can with any advice, information, or a donation.”
Carly’s parents have created a GoFundMe page to help with their medical and legal bills for Carly, and they also have created a website too.
Carly’s parents are hoping to get advice and suggestions from anyone who has dealt with a similar situation to Carly’s since that seems to be their only hope.
You can visit the GoFundMe page created by Carly’s parents here, and you can visit their website here.
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