Toddler Born With An Extremely Rare Genetic Disease Is Already Beating The Odds For Her Survival Rate But Her Loved Ones Are Looking For Help
Irving, Texas. Delta Quinn Ashwin is an adorable little toddler living in Texas along with her family.
She was born on March 5th, 2019, a few days early. “Delta’s life has been full of growing, learning, laughing, and making everyone who meets her smile these last two-and-a-half years,” a GoFundMe page created for her explains.
Last year, Delta’s parents realized that she was going through delays in her motor development, and so they began working with multiple specialists to help figure out why this was happening to Delta.
After going through testing, doctors learned that Delta had something called Leigh Syndrome, which is an extremely rare genetic disease that impacts one child out of every 40,000 that are born.
GoFundMe; pictured above is Delta
“The disease is caused by a genetic defect and will get progressively worse with time, affecting all major organs – especially the brain and nervous system,” the GoFundMe page continued.
“While the average life expectancy of a child diagnosed with Leigh Syndrome is 2.5 years, recent advances in research, support, and therapy have helped many children extend the time they have to love and be loved.”
“Delta will turn 2.5 on September 5th, 2021.”
Leigh Syndrome impacts the spinal cord, brain, and optic nerve, and it causes a person’s central nervous system to essentially fall apart.
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Although Delta has already proved to be beating the odds on her life expectancy, sometimes people who have Leigh Syndrome can live well into their teen years.
Now, Delta’s loved ones are coming together to help raise money to pay for the different treatments she might be eligible for.
Additionally, Delta’s friends and family are hoping that some of the money they raise can be used to research Leigh Syndrome in an effort to potentially find the cure for it or learn more about it.
There really has not been a lot of research done on Leigh Syndrome as of right now since it is so extremely rare, and currently, there is not a cure for the disease.
If you would like to donate to help Delta fight Leigh Syndrome, you can do that here.
More About:Human Interest
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