Days Before She Was About To Get Married, She Came Down With A UTI That Went Undiagnosed, Leaving Her Bed-Bound
In November of 2020, music therapist Milly developed a debilitating urinary tract infection just five days before her wedding.
Knowing she was in pain but unsure if it was a UTI or not, Milly went to a urologist who misdiagnosed her with Interstitial Cystitis/Painful Bladder Syndrome. The symptoms for this correlate with a UTI. However, her culture came back negative.
Dealing with a doctor who carried a dismissive attitude, Milly pleaded for a different diagnosis but was left with an incurable condition and told to manage her pain on her own.
“Milly was offered archaic procedures that often leave women in more significant pain, such as bladder stretching, which does not treat the infection and often worsens it,” her family wrote on a GoFundMe.
As a UTI epidemic sweeps the nation, with a 30% accurate test, many women are left misdiagnosed and in excruciating pain.
Due to her chronic infection, Milly was then placed on antibiotics that would trigger an immune response, eventually causing her neurological complications, hives, and anaphylactic shock.
She was then diagnosed with Mast Cell Activation Syndrome, “which led to further complications and medical intervention and limited her pain management options.”
Unfortunately, this chronic condition has impacted Milly’s quality of life. She is now unable to work, giving up her dream job as a music therapist.
GoFundMe; pictured above is Milly
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Milly was then left bed-bound and living in constant fear of death due to a daily risk of sepsis.
After five months, this bride-to-be was finally diagnosed with a urinary tract infection.
“During those five months without treatment, the superbug embedded and colonized into every area of her bladder, making it incredibly difficult to treat.”
Although she was prescribed antibiotics to help treat her condition, her medication almost killed her.
The stronger antibiotics offered by the Chronic UTI Specialist caused a severe neuro-toxic reaction, leaving Milly with more complications than ever. She was unable to use her hands and was left in a wheelchair with 70% vision loss, heart arrhythmia, and severe gastroenteritis.
“After being discharged from the hospital, Milly spent the next two months in a dark room, fighting for each breath, severely traumatized and in agonizing pain, being cared for by her husband and father.”
While the toxicologist was unable to determine whether this condition would ever be cured, Milly made a miraculous recovery!
She regained strength in her hands, and as her nerves and tendons healed, she was able to walk independently once again. While many of her complications seemed to have recovered, Milly was left with permanent heart damage, and her chronic infection was at its worst.
Milly’s urologist then had her begin another round of antibiotics. Her medications would then cause her to suffer another neurological reaction, affecting her motor skills, leaving her unable to play instruments and devastated.
“There is no further treatment in the UK that is not antibiotically centered, and with the guidance of her medical team, Milly is forced to seek an alternative and expensive treatment in Europe to save her life. This treatment is called Phage Therapy.”
Milly and her family have set up a GoFundMe account for her medical bills, where they have raised over 16,000 euros ($18,000 US dollars) with more than 400 donations.
Unfortunately, this treatment is extremely costly; therefore, Milly desperately needs your help.
If you are able to donate, you can do so here. Overall her family would like to thank everyone from the bottom of their hearts for the amount of support Milly has received.
“No amount is too small, and all works towards Milly accessing the lifesaving treatment she desperately needs.”
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