This Teen Has Been Diagnosed With A Number Of Rare Medical Conditions And Her Family Is Hoping To Get Her To Germany For Treatment
Allison is a 15-year-old going through an unimaginable health crisis, but her family has been with her every step of the way.
She has suffered from a string of issues, and doctors’ diagnoses are coming up short in terms of solutions.
Her parents started a GoFundMe campaign to gain support for Allison as she continues on the long road ahead.
They shared her current list of diagnoses; “So far we know Allison has postural orthostatic tachycardia syndrome, hypermobility spectrum disorder, gastroparesis, and four vascular compressions.”
Allison’s comorbid conditions have resulted in POTS symptoms — light-headedness, nausea — and a stomach with partial paralysis.
In addition, she has been in a wheelchair for the last few months and has experienced increasing discomfort from her connective tissue disorders.
Even with the answers they’ve received, they need more from their medical care professionals.
They wrote in the GoFundMe post, “We have exhausted resources here for her and have been met with so much inexperience…that it’s crucial we seek a true specialist that has decades of knowledge on how these conditions are intertwined (we weren’t sure one existed).”
GoFundMe; pictured above is Allison
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However, specialists in Germany are more experienced in treating her multiple conditions, while specialists in the U.S. would treat her ailments individually, which has proven to be harmful to Allison.
The costs of her necessary invasive abdomen surgery will come out of pocket for the family, and the procedure will require weeks of recovery.
Allison’s family knows the odds are stacked against her, but they are ready to do whatever it takes to save her.
They shared, “Allison has four younger siblings we have to leave behind, which feels impossible, but it’s not a question… Allie is an amazing girl who is worthy of living.”
To read Allison’s story or support her family’s life-saving mission, you can check out their GoFundMe.
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