She’s Been Mute And Using ASL Around Her Daughter Since She Was Little Due To Her Daughter’s Condition, But Now She’s Ready To Start Speaking Again, And Her Daughter Is Angry With Her

ID 49515518 - © Nadino - Dreamstime.com -  illustrative purposes only, not the actual person
ID 49515518 - © Nadino - Dreamstime.com - illustrative purposes only, not the actual person

When you have a child with special needs, you often have to make sacrifices.

One woman’s daughter has a condition that makes certain noises triggering, so she’s been mute and using ASL around her since she was little. Now, she’s ready to start speaking regularly again.

She’s 41 and has a 17-year-old daughter named Ceci with her husband, Ray. When Ceci was a baby, she would have outbursts and meltdowns whenever she heard certain sounds. This included the sound of her voice, which was scary for her as her mother.

At first, she and her husband thought Ceci was on the spectrum, but after meeting with a doctor, they were told she might have misophonia, which is a disorder where people find certain sounds can trigger emotional or physiological responses.

“Her anger was always instant and at its worst whenever I made any noises, so to keep it to a minimum, we formed a plan that I would not speak in her presence, ever,” she explained.

“Instead, I use ASL, texting, text to speech, or Ray will be a messenger. [I use] anything but my mouth, pretty much. I even have to be careful just clearing my throat or making sure she can’t hear me from another room so she isn’t triggered.”

She’s been using these methods for the last six years, and in the meantime, her daughter has been making some improvements by going to therapy and taking classes with an online, specialized school. Unfortunately, she still gets highly triggered by her voice and freaks out if she even hears a peep.

But now that Ceci is almost 18, she and Ray realize it’s finally time to make a change.

“She’ll be starting senior year soon, and Ray and I decided that once she became an adult, I would not be mute anymore,” she said.

ID 49515518 – © Nadino – Dreamstime.com – illustrative purposes only, not the actual person

“I think it’s been long enough now, and Ceci will need to try and make do because her condition is still not recognized by a lot of people, and thus, the real world will not be able to be nearly as accommodating towards her condition compared to others. With a year to go, we thought we’d tell her now in advance so she could prepare.”

Ceci did not take this news well and is angry with the new plan, thinking she won’t be able to function around the house properly.

She thinks things should stay the way they are until she moves out of the house, but no one knows when exactly that will be.

For now, she and Ray are telling Ceci that she can live in their house rent-free for as long as she needs to, but she will have to put up with hearing her mother’s voice. Since they broke this news to Ceci, she hasn’t been speaking to them.

Should they be approaching this situation differently?

You can read the original post on Reddit here.

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